An arteriovenous malformation (AVM) is a tangle of abnormal arteries and veins. My daughter died on March 13, 2015 from a brain AVM when it ruptured. The Aneurysm and AVM Foundation has detailed information on this rare disease, at https://taafonline.org/conditions/avm. … Continue reading →

February 28 is Rare Disease Day, meant to bring awareness to rare conditions and the people affected by them. Finding out that our daughter had a rare disease was shocking, especially because we found out too late. The doctors could … Continue reading →