February 28 is Rare Disease Day, meant to bring awareness to rare conditions and the people affected by them. Finding out that our daughter had a rare disease was shocking, especially because we found out too late. The doctors could not help her, and she never got to know what had been causing all of her health problems. This is sad reality with rare diseases; either it does not get diagnosed, or if it does there may not be a treatment or cure. My daughter Kayln had a brain AVM, and this condition took over her life for several years before it ruptured in 2015, and we lost her. If there were greater awareness, and more funding for research for these conditions, maybe others would not have to go through what our daughter experienced. That is my hope.